Patient Groups & Resources

Alexion shares key goals with patient organisations worldwide, including increasing the understanding of rare and ultra-rare diseases, improving patient care, and enhancing patient access to innovative therapies. Our approach to serving patients is driven by a passion for understanding and meeting the unique needs of patients and families suffering from rare diseases.

We offer programs that provide education and treatment support for patients, and we provide support for advocacy groups and charitable foundations to address the diverse needs of patients globally.

Local patient organisations in Ireland include:

  • Genetic and Rare Disorders Organisation (GRDO)
  • The Irish Platform for Patients' Organisations, Science and Industry (IPPOSI)